What are the effective ways of simplifying the treatment burden of people with CF?
question ranked 1st 2017
treatment burden – the effect all the CF treatments have on everyday life
We explored this question further with surveys and focus groups
The published paper can be found here and lay summary here
Further work looking into difficulties around medication can be read about here
We are aware of several trials aiming to reduce treatment burden, inspired by this question;
- CF STORM is looking at whether certain nebulisers can be safely stopped when people are on CFTR modulators